It’s hard to believe Peyton has been home for nearly 3 weeks! She was put on a schedule in the Nicu, eating every three hours, which has made it very easy to transition to home. While I’d love to get more sleep, fattening her up is important. She’s been quite slow to gain weight, so we’re working on getting her some adorable fat rolls! And I have to say that I may have the best husband around. Ryan’s busy working everyday, yet he still makes it a point to pick up some of the overnight feedings. He wants to make sure I’m well rested…I say we make a great team!
So while Mr. Skry is at work, I hold down the fort with Peyton. Lately, that includes endless doctor’s appointments. In order to get out of the house, I have to lug around a portable oxygen take, a monitor , a diaper bag and Peyton! It is SO heavy and I’m exhausted by the time I make it to her appointments! But I can’t complain too much–Since we are staying somewhat isolated at home, these daily trips to the doctor mean I get to make a trip to Starbucks (my addiction!!!). We may be out of the hospital, but it doesn’t mean she is out of the woods just yet. Peyton has a long ways to go. She was born more 4 months ago, but she is much like a newborn. Since my due date was October 20th, you can consider her a “2 week old”. Because she was born so premature, she won’t catch up to kids her actual age for another few years. And while she is home with us and doing great, we don’t know what the road ahead will look like. We sure hope that she will lead a normal childhood, but she could still face a number of complications. That’s why we are working with so many doctors and therapists. We see an eye doctor, a cardiologist and an ENT, to name a few. She also works with several therapists to make sure she is developing well. Think about it–for four months, she should have been cooking away inside of me. Instead, she was in an incubator as doctors tried to mimic the womb.
In between the constant appointments, I have plenty of time to stare at Peyton. It’s amazing to see how much she changes on a daily basis. Things like making eye contact are getting easier for her and her diva-like ways from the Nicu are making their way into the home. She sure makes it known when she is upset! And course, she is continuing with her hilarious facial expressions. That’s something that makes us laugh all of the time. Check out the pictures below for some signature Peyton faces.
And an exciting announcement to make–Ryan and I are SO honored to be part of the upcoming Children’s Miracle Network Radiothon. We will be one of the few families sharing our story as they raise money for the hospital. We owe our lives to St. John’s Children’s Hospital. I don’t think any of our children would have survived if were somewhere else. The hospital is one of the few in the state to have a high level Nicu that can help the smallest and sickest babies. The doctors gave our children a chance to live and fought for their lives day in and day out. We were thrilled when they asked us to take part. The WDBR Cares For Kids Radiothon will be held November 21st and 22nd on 103.7 FM. You can listen to our miracle story and hear from other families. 100% of the money raised stays in Central Illinois. Ryan and I met with Blake from WDBR (awesome DJ!) and the CMN crew and recorded an interview that will air in the coming weeks. It will bring out the tears, but we are so happy to spread our inspirational story about loss and miracles.
And one last note–These pictures are too cute for words! Miss Peyton had a photo shoot on Monday, posing for some “welcome home” pictures. Nurse Paige took those amazing photos of Parker before he passed away and we were so grateful that she could come to our house for a happier occasion. It was a bit of a challenge, since Peyton is on oxygen, but she made it work! I’ll share how Paige did it, plus some of the proofs in the coming weeks. But for now, here are a couple of the behind the scene pictures. She’s such a talented photographer! You can check out her work through this link: Paige Hampton Photography.